Volume 24, Issue 1 (3-2021)
jha 2021, 24(1): 84-97 |
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Sheikhtaheri A, Salmani H, Nahvijou A. Requirements of self-management applications for patients with colorectal cancer. jha 2021; 24 (1) :84-97
URL: http://jha.iums.ac.ir/article-1-3501-en.html
URL: http://jha.iums.ac.ir/article-1-3501-en.html
1- Associate Professor, School of Health Management and Information Sciences, Iran University of Medical Sciences, Tehran, Iran.
2- M.Sc., Student, School of Health Management and Information Sciences, Iran University of Medical Sciences, Tehran, Iran. ,salmani.h@iums.ac.ir
3- Assistant Professor, Cancer Research Center of Cancer Institute of Iran, Tehran University of Medical Sciences, Tehran, Iran.
2- M.Sc., Student, School of Health Management and Information Sciences, Iran University of Medical Sciences, Tehran, Iran. ,
3- Assistant Professor, Cancer Research Center of Cancer Institute of Iran, Tehran University of Medical Sciences, Tehran, Iran.
Abstract: (2676 Views)
Introduction: Patients with colorectal cancer experience disabilities and complications that lead to reduced quality of life. To reduce the symptoms and complications of the disease, reduce the costs, and increase the quality of life, patients should manage and control their disease. The aim of this study was to identify the requirements of a mobile-based application for self-management of patients with colorectal cancer.
Methods: The present descriptive-applied research was conducted from 2020 to 2021. The requirements of the colorectal cancer application (including educational content, data elements, and capabilities) were assessed using needs assessments from patients, physicians, and nurses. The questionnaire was distributed among 114 people at the Cancer Institute and Firouzgar Hospital in Tehran. The obtained data (88 cases) were analyzed using the SPSS software, and the required components were identified.
Results: Except the need for training for fatigue, other educational needs were considered necessary. In terms of essential data elements and according to the perspective of the patients, physicians, and nurses, the clinical data were more important than the demographic data. In addition, out of 79 features in 10 categories including drug management, nutrition and diet management, pain management, fatigue management, stress reduction and control, anxiety and depression, sleep management, exercise and physical activity, smoking and alcohol cessation, communication, and ancillary tools of a self-management application, 39 features were considered necessary.
Conclusion: Applying the requirements mentioned in the present study can improve the self-management of the patients with colorectal cancer. The features provided can be used as a model for designing software, systems, or applications.
Methods: The present descriptive-applied research was conducted from 2020 to 2021. The requirements of the colorectal cancer application (including educational content, data elements, and capabilities) were assessed using needs assessments from patients, physicians, and nurses. The questionnaire was distributed among 114 people at the Cancer Institute and Firouzgar Hospital in Tehran. The obtained data (88 cases) were analyzed using the SPSS software, and the required components were identified.
Results: Except the need for training for fatigue, other educational needs were considered necessary. In terms of essential data elements and according to the perspective of the patients, physicians, and nurses, the clinical data were more important than the demographic data. In addition, out of 79 features in 10 categories including drug management, nutrition and diet management, pain management, fatigue management, stress reduction and control, anxiety and depression, sleep management, exercise and physical activity, smoking and alcohol cessation, communication, and ancillary tools of a self-management application, 39 features were considered necessary.
Conclusion: Applying the requirements mentioned in the present study can improve the self-management of the patients with colorectal cancer. The features provided can be used as a model for designing software, systems, or applications.
Type of Study: Research |
Subject:
Health Information Management
Received: 2021/01/23 | Accepted: 2021/03/17 | Published: 2021/05/26
Received: 2021/01/23 | Accepted: 2021/03/17 | Published: 2021/05/26
References
1. Phillips J. The need for an integrated approach to supporting patients who should self manage. self-care. 2012;3(2):33-41.
2. World Health Organization, International Aggency for Research in Cancer. Global cancer observatory [Internet]. 2020 [cited 2021 Feb 24]; Available from: http://globocan.iarc.fr.
3. Adler A, Geiger S, Keil A, Bias H, Schatz P, deVos T, et al. Improving compliance to colorectal cancer screening using blood and stool based tests in patients refusing screening colonoscopy in germany. BMC Gastroenterology. 2014;14(1):183. [DOI:10.1186/1471-230X-14-183]
4. Peterson CY. Risk factors for colorectal cancer. MOJ Surg. 2015;2(2):37-42. [DOI:10.15406/mojs.2015.02.00015]
5. Kolligs FT. Diagnostics and epidemiology of colorectal cancer. Visc Med. 2016;32(3):158-64. [DOI:10.1159/000446488]
6. Durko L, Malecka-Panas E. Lifestyle modifications and colorectal cancer. Curr Colorectal Cancer Rep. 2014;10(1):45-54. [DOI:10.1007/s11888-013-0203-4]
7. Gao WJ, Yuan CR. Self-management programme for cancer patients: A literature review. Int Nurs Rev. 2011;58(3):288-95. [DOI:10.1111/j.1466-7657.2011.00907.x]
8. Schulman-Green D, Bradley EH, Knobf MT, Prigerson H, DiGiovanna MP, McCorkle R. Self-management and transitions in women with advanced breast cancer. J Pain Symptom Manage. 2011;42(4):517-25. [DOI:10.1016/j.jpainsymman.2010.12.007]
9. Kim BY, Park KJ, Ryoo SB. Effects of a mobile educational program for colorectal cancer patients undergoing the enhanced recovery after surgery. Open Nurs J. 2018;12:142-54. [DOI:10.2174/1874434601812010142]
10. O'neill S, Brady RR. Colorectal smartphone apps: Opportunities and risks. Colorectal Dis. 2012;14(9):e530-e34. [DOI:10.1111/j.1463-1318.2012.03088.x]
11. Drott J, Vilhelmsson M, Kjellgren K, Berterö C. Experiences with a self-reported mobile phone-based system among patients with colorectal cancer: A qualitative study. JMIR Mhealth Uhealth. 2016;4(2):e66. [DOI:10.2196/mhealth.5426]
12. Weaver A, Young AM, Rowntree J, Townsend N, Pearson S, Smith J, et al. Application of mobile phone technology for managing chemotherapy-associated side-effects. Ann Oncol. 2007;18(11):1887-92. [DOI:10.1093/annonc/mdm354]
13. Ribarov R, Ivanov A, Ivanova N, Vodenicharov T. Necessity of self-management support following colorectal cancer treatment. Archives of the Balkan Medical :union:. 2017;52(3):285-91.
14. Anderson AS, Steele R, Coyle J. Lifestyle issues for colorectal cancer survivors-perceived needs, beliefs and opportunities. Support Care Cancer. 2013;21(1):35-42. [DOI:10.1007/s00520-012-1487-7]
15. Ose D, Baudendistel I, Winkler EC, Eckrich F, Heinze O, Szecsenyi J. Rethinking self-management support in patients with colorectal cancer? Qualitative analysis of patient strategies to manage their intersectoral care. Wonca Europe Conference; 2014 Jul 1; Lisbon, Portugal: Portuguese Association of General Practice and Family Medicine; 2014. p. 154.
16. Lin CL, Liu TC, Wang YN, Chung CH, Chien WC. The association between sleep disorders and the risk of colorectal cancer in patients: A population-based nested case-control study. In Vivo. 2019;33(2):573-79. [DOI:10.21873/invivo.11513]
17. Mansfield E, Mackenzie L, Carey M, Peek K, Shepherd J, Evans TJ. Can models of self-management support be adapted across cancer types? A comparison of unmet self-management needs for patients with breast or colorectal cancer. Support Care Cancer. 2018;26(3):823-31. [DOI:10.1007/s00520-017-3896-0]
18. Ran L, Jiang X, Qian E, Kong H, Wang X, Liu Q. Quality of life, self-care knowledge access, and self-care needs in patients with colon stomas one month post-surgery in a chinese tumor hospital. Int J Nurs Sci. 2016;3(3):252-58. [DOI:10.1016/j.ijnss.2016.07.004]
19. Odeh B, Kayyali R, Nabhani-Gebara S, Philip N. Optimizing cancer care through mobile health. Support Care Cancer. 2015;23(7):2183-188. [DOI:10.1007/s00520-015-2627-7]
20. Centers for disease control and prevention. Colorectal (colon) cancer [Internet]. 2021 [cited 2021 Feb 24]; Available from: https://www.cdc.gov/cancer/colorectal/index.htm.
21. American institute for cancer research. Colorectal cancer [Internet]. 2021 [Update 2019 Dec 18; cited 2021 Feb 24]; Available from: https://www.aicr.org/cancer-survival/cancer/colorectal-cancer/.
22. Chen Y, Tan F, Wei L, Li X, Lyu Z, Feng X, et al. Sleep duration and the risk of cancer: A systematic review and meta-analysis including dose-response relationship. BMC Cancer. 2018;18(1):1149. [DOI:10.1186/s12885-018-5025-y]
23. Kidd L, Kearney N, O'Carroll R, Hubbard G. Experiences of self-care in patients with colorectal cancer: A longitudinal study. J Adv Nurs. 2008;64(5):469-77. [DOI:10.1111/j.1365-2648.2008.04796.x]
24. Husebø AML, Morken IM, Eriksen KS, Nordfonn OK. The patient experience with treatment and self-management (pets) questionnaire: Translation and cultural adaption of the norwegian version. BMC Med Res Methodol. 2018;18(1):1-12. [DOI:10.1186/s12874-018-0612-9]
25. Kim AR, Park HA. Web-based self-management support interventions for cancer survivors: A systematic review and meta-analyses. Stud Health Technol Inform. 2015;216:142-47.
26. Ribarov R. Our experience in self-management support following colorectal cancer treatment. Chen J, Editor. Colorectal cancer: Diagnosis, screening and management. London: IntechOpen. 2017; p. 106-18. [DOI:10.5772/intechopen.72194]
27. Hernandez Silva E, Lawler S, Langbecker D. The effectiveness of mhealth for self-management in improving pain, psychological distress, fatigue, and sleep in cancer survivors: A systematic review. J Cancer Surviv. 2019;13(1):97-107. [DOI:10.1007/s11764-018-0730-8]
28. Wong CL, Lee HHC, Chang SC. Colorectal cancer rehabilitation review. Journal of Cancer Research and Practice. 2016;3(2):31-3. [DOI:10.1016/j.jcrpr.2015.07.001]
29. Ayyoubzadeh SM, Shirkhoda M, Rostam Niakan Kalhori Sh, Mohammadzadeh N, Zakerabasali S. Smartphone remote monitoring app to follow-up colorectal cancer survivors: A requirement analysis.JMIR Cancer.[preprint].2020 [cited 2021Apr 25].Available from:https://preprints.jmir.org/preprint/1808/accepted [DOI:10.2196/18083]
30. Salimian N, Ehteshami A, Ashouri-Talouki M. Developing ghasedak: A mobile application to improve the quality of cancer palliative care. Acta Inform Med. 2019;27(1):19-22. [DOI:10.5455/aim.2019.27.19-22]
31. Neubeck L, Lowres N, Benjamin EJ, Freedman SB, Coorey G, Redfern J. The mobile revolution- using smartphone apps to prevent cardiovascular disease. Nat Rev Cardiol. 2015;12(6):350-60. [DOI:10.1038/nrcardio.2015.34]
32. Malmi E, Weber I. You are what apps you use: Demographic prediction based on user's apps. Proceedings of the 10th International Conference on Web and Social Media, ICWSM; 2016 May 17-20; Cologne, Germany: AAAI Press; 2016. P. 635-38.
33. Melissant HC, Verdonck-de Leeuw IM, Lissenberg-Witte BI, Konings IR, Cuijpers P, Van Uden-Kraan CF. 'Oncokompas', a web-based self-management application to support patient activation and optimal supportive care: a feasibility study among breast cancer survivors. Acta Oncol. 2018; 57(7):924-34. [DOI:10.1080/0284186X.2018.1438654]
34. Choe S, Lee J, Park JW, Jeong SY, Cho YM, Park BJ, et al. Prognosis of patients with colorectal cancer with diabetes according to medication adherence: A population-based cohort study. Cancer Epidemiol Biomarkers Prev. 2020;29(6):1120-27. [DOI:10.1158/1055-9965.EPI-19-1455]
35. Scarborough BM, Smith CB. Optimal pain management for patients with cancer in the modern era. CA Cancer J Clin. 2018;68(3):182-96. [DOI:10.3322/caac.21453]
36. McCorkle R, Ercolano E, Lazenby M, Schulman‐Green D, Schilling LS, Lorig K, et al. Self‐management: Enabling and empowering patients living with cancer as a chronic illness. CA Cancer J Clin. 2011;61(1):50-62. [DOI:10.3322/caac.20093]
37. Bahrami M, Dehghani S, Eghbali M, Daryabeygi R. The impact of educational communication program on satisfaction of cancer patients and pain management undergoing surgery. Medical Ethics Journal. 2013;7(26):47-67. [In Persian]
38. Santana S, Lausen B, Bujnowska-Fedak M, Chronaki C, Kummervold PE, Rasmussen J, et al. Online communication between doctors and patients in europe: Status and perspectives. J Med Internet Res. 2010;12(2):e20. [DOI:10.2196/jmir.1281]
39. Duwadi EP. Digital health and doctor-patient communication in nepal. J Healthc Commun. 2016;1(4):1-7.
40. Youssef A, Alharthi H, Al Khaldi O, Alnaimi F, Alsubaie N, Alfariss N. Effectiveness of text message reminders on nonattendance of outpatient clinic appointments in three different specialties: A randomized controlled trial in a saudi hospital. J Taibah Univ Med Sci. 2014;9(1):23-9. [DOI:10.1016/j.jtumed.2013.10.001]
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