Volume 24, Issue 2 (7-2021)                   jha 2021, 24(2): 70-82 | Back to browse issues page


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Ahmadi M, karimi M, Baluchnejad Mojarad T. Developing a Dashboard for Alzheimer's Disease Registry System. jha 2021; 24 (2) :70-82
URL: http://jha.iums.ac.ir/article-1-3449-en.html
1- Professor, School of Health Management and Information Sciences, Iran University of Medical Sciences, Tehran, Iran.
2- M.Sc. Student, School of Health Management and Information Sciences, Iran University of Medical Sciences, Tehran, Iran. , karimi.mahdieh.70@gmail.com
3- Professor, School of Medicine, Iran University of Medical Sciences, Tehran, Iran.
Abstract:   (1853 Views)
Introduction: Alzheimer's disease registry system is of great help in generating big data through collecting data over time. Visual analysis tools such as dashboards can be used to convert this data into knowledge. Based on the needs of stakeholders, we in the present study determined the key indicators of Alzheimer's disease; then, based on the Alzheimer's disease registry system, we designed and evaluated the dashboard.
Methods: In the first stage, we determined the key performance indicators through a questionnaire completed by 31 members of the Alzheimer's disease research core at Iran University of Medical Sciences. In the second stage, we designed the dashboard based on previous studies and using QlickView software. Finally, we designed the dashboard by the System Usability Scale which was conducted by four members of the Alzheimer's disease research core and three medical and health information technology graduates.
Results: Among the 15 key performance indicators approved by members of the Alzheimer's disease registry, three indicators have got the highest score; these indicators are as follows: the ratio of patients with a history of mental disorders compared to the total number of patients, the ratio of patients with a history of depression compared to the total number patients, and comparing the prevalence and incidence of the total population. Then, we evaluated the usability of the dashboard by the system usability scale whose average score was 71.7.
Conclusion: Implementing the Alzheimer's disease dashboard will play an important role in meeting the needs of each stakeholder and increasing the ability to analyze information in order to make better decisions.
Full-Text [PDF 1428 kb]   (918 Downloads)    
Type of Study: Research | Subject: Health Information Management
Received: 2021/01/18 | Accepted: 2021/06/20 | Published: 2021/09/11

References
1. Khaledi S, Ahmadi S. Amyloid beta and tau: from physiology to pathology in alzheimer's disease. Shefaye Khatam. 2016;4(4):67-88. [In Persian] [DOI:10.18869/acadpub.shefa.4.4.67]
2. Naseri F, Ahmad-Zadeh AM, Sahab Negah S. Potential roles of Neurogenesis in Alzheimer's disease. Medical Journal of Mashhad University of Medical Sciences. 2017; 60(3):549-66. [In Persian]
3. Alzheimer's Association. Alzheimer's disease facts and figures 2018. Alzheimer Dement. 2018;14(3):367-429. [DOI:10.1016/j.jalz.2018.02.001]
4. Chou DC. Health information systems: Architectures and strategies. J Am Med Assoc. 2011;306(12):1383-4. [DOI:10.1001/jama.2011.1370]
5. Garre-Olmo J, Flaqué M, Gich J, Pulido TO, Turbau J, Vallmajo N, et al. A clinical registry of dementia based on the principle of epidemiological surveillance. BMC Neurol. 2009;9(1):5. [DOI:10.1186/1471-2377-9-5]
6. Saunders KT, Langbaum JB, Holt CJ, Chen W, High N, Langlois C, et al. Arizona Alzheimer's Registryregistry: Strategy and outcomes of a statewide research recruitment registry. BMC NeurolJ Prev Alzheimers Dis. 2014;1(2):74-9.
7. Gliklich RE, Dreyer NA, Leavy MB. Registries for evaluating patient outcomes: A user's guide. 3rd ed. Rockville (MD): Agency for Healthcare Research and Quality (US); 2014 Apr. Report No: 13(14)-EHC111.
8. Religa D, Fereshtehnejad SM, Cermakova P, Edlund AK, Garcia-Ptacek S, Granqvist N, et al. SveDem, the Swedish dementia registry-a tool for improving the quality of diagnostics, treatment and care of dementia patients in clinical practice. PloS one. 2015;10(2):e0116538. [DOI:10.1371/journal.pone.0116538]
9. Anthony S, Pradier C, Chevrier R, Festraëts J, Tifratene K, Robert P. The French national Alzheimer database: A fast growing database for researchers and clinicians. Dement Geriatr Cogn Disord. 2014;38(5-6):271-80. [DOI:10.1159/000360281]
10. Ghazi Saeedi M, Khara R, Hosseiniravandi M. Necessitates of using dashboards in health information management. Health Inf Manage. 2015;12(2):255-62. [In Persian]
11. Mould DR, Upton RN, Wojciechowski J. Dashboard systems: Implementing pharmacometrics from bench to bedside. AAPS J. 2014;16(5):925-37. [DOI:10.1208/s12248-014-9632-5]
12. Prince MJ, Wimo A, Guerchet M, Ali GC, Wu YT, Prina M, World Alzheimer Report 2015: The global impact of dementia: An analysis of prevalence, incidence, cost and trends. London: Alzheimer's disease International; 2015 Aug. 82 p.
13. Robertson H, Nicholas N, Travaglia J, Dhagat A. A spatial dashboard for Alzheimer's disease in New South Wales. Stud Health Technol Inform. 2017;239:126-32.
14. Ahmadi H, Rezazadeh M, Sheikhtaheri A. Developing an information management dashboard for oncology wards. Jouranal of Health Administration. 2019;22(2):67-85. [In Persian]
15. Richardson J, Schlegel K, Sallam RL, Kronz A, Sun J. Gartner Magic quadrant for analytics and business intelligence platforms [Internet]. 2021[cited 2021 Apr 17]; Available from: https://www.gartner.com/en/documents/3996944-magic-quadrant-for-analytics-and-business-intelligence-p/.
16. U.S. General Services Administration (GSA). System Usability Scale(SUS) [Internet]. 2020 [Updated 2020 Sep 30; cited 2020 Dec 15]; Available from: https://www.usability.gov/how-to-and-tools/methods/system-usability-scale.html.
17. Pal D, Vanijja V. Perceived usability evaluation of microsoft teams as an online learning platform during COVID-19 using system usability scale and technology acceptance model in India. Child Youth Serv Rev. 2020;119:105535. [DOI:10.1016/j.childyouth.2020.105535]
18. Park HK, Na DL, Han SH, Kim JY, Cheong HK, Kim SY, et al. Clinical characteristics of a nationwide hospital-based registry of mild-to-moderate Alzheimer's disease patients in Korea: A CREDOS (Clinical Research Center for Dementia of South Korea) study. J Korean Med Sci. 2011;26(9):1219-26. [DOI:10.3346/jkms.2011.26.9.1219]
19. Yadav K, Diana MML, Bhutia GT, Owoalade SA. Review on aetiology, diagnosis and treatment of Alzheimer's disease. Journal of Drug Delivery and Therapeutics. 2019;9(3):626-33.
20. Taudorf L, Nørgaard A, Islamoska S, Jørgensen K, Laursen TM, Waldemar G. Declining incidence of dementia: A national registry-based study over 20 years. Alzheimers Dement. 2019;15(11):1383-91. [DOI:10.1016/j.jalz.2019.07.006]
21. Jinpon P, Jaroensutasinee M, Jaroensutasinee K. Integrated information visualization to support decision-making in order to strengthen communities: Design and usability evaluation. Inform Health Soc Care. 2017;42(4):335-48. [DOI:10.1080/17538157.2016.1255626]
22. Karami M. A design protocol to develop radiology dashboards. Acta Inform Med. 2014;22(5):341-6. [DOI:10.5455/aim.2014.22.341-346]
23. Jespersen S. Dashboard design guidelines for improved evidence based decision making in public health in developing countries[Master thesis].Oslo: University of Oslo; 2017.
24. Kaya A, Ozturk R, Gumussoy CA. Usability measurement of mobile applications with system usability scale (SUS). In: Calisir F, Cevikcan E, Akdag HC, editors. Proccedings of Industrial Engineering in the Big Data Era;2018 Jun 21-22; Nevsehir,Turkey: Springer; 2019. p. 389-400. [DOI:10.1007/978-3-030-03317-0_32]
25. Borsci S, Federici S, Bacci S, Gnaldi M, Bartolucci F. Assessing user satisfaction in the era of user experience: Comparison of the SUS, UMUX, and UMUX-LITE as a function of product experience. Int J Hum Comput Interact. 2015;31(8):484-95. [DOI:10.1080/10447318.2015.1064648]
26. Dowding D, Merrill JA, Barrón Y, Onorato N, Jonas K, Russell D. Usability evaluation of a dashboard for home care nurses. Comput Inform Nurs. 2019;37(1):11-9. [DOI:10.1097/CIN.0000000000000484]

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